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Merry Christmas Everyone!

Merry Christmas Everyone!

Here I am with my family on Christmas for the first time in 9 years.

This is also the second year in a row that I have been able to give my family gifts. Which is so special and so much fun for me. And this is the first time in 9 years I will be receiving Christmas gifts!

For the last 9 years before Abilify i spent Christmas alone, in stillness, darkness and silence. Not a word about it was spoken nor did anything out of the ordinary happen. So getting to see my family, especially my amazing, brilliant, beautiful Niece and new Nephew for the first time is huge positive progress for me and makes me so happy. I feel so lucky.

It was only an hour or so but I’m so exhausted now I can hardly post this.

I am thinking about all of you today. My heart goes out to all of you. The patients who are alone today or have to leave their family to rest. The parents, loved ones and caregivers who have to sacrifice their time this season to take care of someone with ME/CFS. We are all doing this today and so we are not doing it alone. We all understand this struggle and how hard it is for all of us.

But we also have so much to look forward to. Things are going to get better as research progresses. Ron Davis and other researchers have made major breakthroughs this year and there is so much hope on the horizon. Let’s remember that today as we gather to celebrate Christmas, religion, love and family.

Together, we will overcome ME/CFS and we will get the greatest gift of all - our lives back.

I love you all and could not do this without each and every one of you.

Merry Christmas!


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