How Are Hospitals Killing People?
How have we come to a place where hospitals are not only abusing people, but killing them? These are the most basic centers for health, healing and care in our society. For them to be abusive and killing means there is something seriously wrong with the NHS in the UK.
Everyone and anyone should be able to go to a hospital and be treated for any condition. They should be centers of comfort, wellness and care. We should feel safe going to a hospital knowing they are the best place in the entire world to be when we are sick or unwell.
But instead, when you have ME/CFS, hospitals are the stuff of horror stories. They blame, accuse, judge, then they misdiagnose, abuse, mistreat, and physically torture us like victims in a serial killer movie. The walls of UK hospitals are soaked in the blood of dead ME/CFS patients.
And hospitals in other countries are no better. But we deserve better. Humanity deserves better. ME/CFS and Long Covid patients deserve better.
END THE HORROR
An 18 year old girl named Millie McAinch recently went to the Royal Lancaster Infirmary in the UK because she was not able to eat. She has severe ME/CFS and her stomach is not functioning properly, not allowing her to eat enough calories to stay alive. So they had to go to the hospital to have a feeding tube installed.
But instead of giving her a feeding tube, the doctors at the Royal Lancaster Infirmary tried to section her for an eating disorder, prevented her family from seeing her and kept her in the exact opposite conditions dictated by the NICE guidelines designed to prevent ME/CFS patients from being abused and getting worse while in the care of medical professionals. So Millie's case of severe ME/CFS worsened every single moment.
The doctors would not accept a diagnosis of severe ME. And to this day, they refuse. Millie has been in the hospital for I believe 2 weeks now simply because they refuse to give her a feeding tube.
The situation is not complex, you don’t even need to understand anything about ME/CFS to look at her vomiting up all of her food and realize she needs a feeding tube. But the doctors and staff would not at first even read the NICE guidlines or try to educate themselves about the illness Millie has.
Installing a feeding tube is a 1-2 hour procedure, which I know because I have a Jtube and have had this procedure done on myself in hospital at least 10 times. Feeding tubes break and need to be replaced every 6 months or so, sometimes less. If the doctors at Royal Lancaster Infirmary chose to, they could install a feeding tube in Millie today and release her from the hospital tonight.
Severe ME/CFS patients are being killed at an unknown rate in UK hospitals. And no one is doing anything to stop it.
Since writing about this issue I have spoken to countless patients who have barely managed to survive this experience and have horror stories about being kept against their will in UK hospitals for this same reason; The doctors refused to accept the diagnosis of ME/CFS and so kept patients at the hospital because they would not give them a feeding tube and at the same time could not release them because the patients could not eat enough to stay alive. These people were literally tortured sometimes for months and are permanently traumatized to the extent that they will never recover from the experience.
If a doctor killed a patient with heart disease due to treatments based on their own personal judgments and beliefs while ignoring all the facts and information and knowledge available (even on the internet) all doctors involved would be fired and sued for huge sums of money.
This is more enraging testament to the way even doctors with degrees in medicine think they are entitled to an opinion about ME/CFS without any kind of knowledge about the illness; Based on "beliefs" alone. And this infuriates me. No one treats cancer, HIV, Heart Disease, MS, Lupus or any other health condition when they know nothing about it. Uneducated beliefs and opinions are the reason we bled patients with leaches in the 1800’s. Millie's treatment at the Royal Lancaster Infirmary and the experience of countless other ME/CFS patients at hospitals around the world is no different than bleeding someone with a leach in a modern hospital in 2024.
Clearly the NHS staff and doctors are not "bad people", I don't believe in "bad people". The problem starts with a lack of education about ME/CFS from the top of our society, but this is then escalated by bigoted, ignorant and extremely arrogant health care professionals who inflict treatments based on uneducated, untrained opinions on extremely sick or dying patients.
The world deserves better.
END THE HORROR
#EndMECFSmalpractice
love,
Whitney
Let’s FLOOD THEM with copies of this letter to make sure they actually read it! Based on their unbelievable incompetence about ME/CFS, I have doubts about them opening letters or reading them.
And if the hospital knows that an international community endorses this letter that makes it much more powerful. If you are able, you can add your signature to my name, or a personal note from you. But that’s not necessary if you are too sick.
Everyone and anyone should be able to go to a hospital and be treated for any condition. They should be centers of comfort, wellness and care. We should feel safe going to a hospital knowing they are the best place in the entire world to be when we are sick or unwell.
But instead, when you have ME/CFS, hospitals are the stuff of horror stories. They blame, accuse, judge, then they misdiagnose, abuse, mistreat, and physically torture us like victims in a serial killer movie. The walls of UK hospitals are soaked in the blood of dead ME/CFS patients.
And hospitals in other countries are no better. But we deserve better. Humanity deserves better. ME/CFS and Long Covid patients deserve better.
END THE HORROR
An 18 year old girl named Millie McAinch recently went to the Royal Lancaster Infirmary in the UK because she was not able to eat. She has severe ME/CFS and her stomach is not functioning properly, not allowing her to eat enough calories to stay alive. So they had to go to the hospital to have a feeding tube installed.
But instead of giving her a feeding tube, the doctors at the Royal Lancaster Infirmary tried to section her for an eating disorder, prevented her family from seeing her and kept her in the exact opposite conditions dictated by the NICE guidelines designed to prevent ME/CFS patients from being abused and getting worse while in the care of medical professionals. So Millie's case of severe ME/CFS worsened every single moment.
The doctors would not accept a diagnosis of severe ME. And to this day, they refuse. Millie has been in the hospital for I believe 2 weeks now simply because they refuse to give her a feeding tube.
The situation is not complex, you don’t even need to understand anything about ME/CFS to look at her vomiting up all of her food and realize she needs a feeding tube. But the doctors and staff would not at first even read the NICE guidlines or try to educate themselves about the illness Millie has.
Installing a feeding tube is a 1-2 hour procedure, which I know because I have a Jtube and have had this procedure done on myself in hospital at least 10 times. Feeding tubes break and need to be replaced every 6 months or so, sometimes less. If the doctors at Royal Lancaster Infirmary chose to, they could install a feeding tube in Millie today and release her from the hospital tonight.
Severe ME/CFS patients are being killed at an unknown rate in UK hospitals. And no one is doing anything to stop it.
Since writing about this issue I have spoken to countless patients who have barely managed to survive this experience and have horror stories about being kept against their will in UK hospitals for this same reason; The doctors refused to accept the diagnosis of ME/CFS and so kept patients at the hospital because they would not give them a feeding tube and at the same time could not release them because the patients could not eat enough to stay alive. These people were literally tortured sometimes for months and are permanently traumatized to the extent that they will never recover from the experience.
If a doctor killed a patient with heart disease due to treatments based on their own personal judgments and beliefs while ignoring all the facts and information and knowledge available (even on the internet) all doctors involved would be fired and sued for huge sums of money.
This is more enraging testament to the way even doctors with degrees in medicine think they are entitled to an opinion about ME/CFS without any kind of knowledge about the illness; Based on "beliefs" alone. And this infuriates me. No one treats cancer, HIV, Heart Disease, MS, Lupus or any other health condition when they know nothing about it. Uneducated beliefs and opinions are the reason we bled patients with leaches in the 1800’s. Millie's treatment at the Royal Lancaster Infirmary and the experience of countless other ME/CFS patients at hospitals around the world is no different than bleeding someone with a leach in a modern hospital in 2024.
Clearly the NHS staff and doctors are not "bad people", I don't believe in "bad people". The problem starts with a lack of education about ME/CFS from the top of our society, but this is then escalated by bigoted, ignorant and extremely arrogant health care professionals who inflict treatments based on uneducated, untrained opinions on extremely sick or dying patients.
The world deserves better.
END THE HORROR
#EndMECFSmalpractice
love,
Whitney
❗CALL TO ACTION❗
I would like to ask everyone who is able, to send a copy of my letter to the Royal Lancaster Infirmary where Millie is being held/"treated".Let’s FLOOD THEM with copies of this letter to make sure they actually read it! Based on their unbelievable incompetence about ME/CFS, I have doubts about them opening letters or reading them.
And if the hospital knows that an international community endorses this letter that makes it much more powerful. If you are able, you can add your signature to my name, or a personal note from you. But that’s not necessary if you are too sick.