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Absence of Life

Energy is what gives humans and all animals life. You could define ME/CFS by calling it the absence of life. The more severe you have ME/CFS the less alive you are. Severe ME/CFS patients are literally on death’s door, clinging to a tiny corner of their body and mind that is still alive.

This needs to be understood by the public, doctors and scientists of the world. ME/CFS does not cause "tiredness". Having ME/CFS means literally being less alive but still completely conscious to experience the lack of life within you.

This is why ME/CFS causes so much profound suffering. Our lives are taken away from us physically. And yet we must bear witness to our limited state of existence. For years and decades. As the world keeps going on without us. And no one but fellow ME/CFS patients understand.

I understand.

Donate to ME/CFS research at the Open Medicine Foundation to help stop the suffering of millions and end ME/CFS.

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