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Letter To President Biden

Dear President Biden,
As I watched your first address to Congress, I felt my heart sink as you pledged your support for countless marginalized groups of people in America and failed to even mention Chronic Fatigue Syndrome/Myalgic Encephalomyelitis - an epidemic that has been ignored for 40 years. A living death is a death, President Biden.

As we approach ME/CFS awareness day on May 12, it would be a great time to start funding ME/CFS proportional to the number of people affected and the suffering inflicted. ME/CFS received only 15 million dollars last year from NIH. 100 million dollars needs to be invested in ME/CFS research immediately and this then needs to be increased to 250 million per year to support current grants. This would fund research on ME/CFS at a similar level to other chronic illnesses and end 40 years of extreme prejudice. Then we should start talking about the medical and societal support programs that we need. If health care is a human right, as you said it was, then we deserve health care. We are human beings President Biden.

Sincerely,
Whitney Dafoe
Severe ME/CFS Patient




Donate to ME/CFS research at the Open Medicine Foundation to help stop the suffering of millions and end ME/CFS.








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